Recent Projects

 Prospective Infantile Spasms Database

A prospective study of the evaluation, diagnosis and treatment of infantile spasms in the US

Early Onset Epilepsy Database

A prospective study of all early life epilepsies focused on their evaluations, diagnoses, treatments, and early outcomes

Prevent West Syndrome
A discovery project to determine if Infantile Spasms/ West Syndrome can be predicted based on EEG findings in high risk infants.

Evaluation, Diagnosis, and Treatment of Dravet Syndrome: A North American Consensus

Developing standards of care and identifying priority areas for research using a modified Delphi process.   

RIKEE: Rational Intervention of KCNQ2 Epileptic Encephalopathy

The pediatric epilepsy research consortium is focused on improving the lives of children with epileptic

encephalopathies through collaborative research.  We strive to encourage young researchers through mentorship and encourage multicenter research.