PERC

Joseph Sullivan, MD is an Associate Professor of Neurology & Pediatrics at UCSF and Director of the UCSF Pediatric Epilepsy Center.  As a clinician he enjoys seeing all forms of childhood epilepsy but has primary interests in Dravet Syndrome, PCDH19 Female Clustering Epilepsy, and evaluating children for epilepsy surgery.  His current research projects include the Epilepsy Genetics Initiative, the Early Onset Epilepsy Study and developing an expert consensus statement for the treatment of Dravet Syndrome.  He serves on the PERC Steering Committee, the Dravet Syndrome Association Medical Advisory Board, the PCDH19 Alliance Scientific Advisory Board, and is Vice Chair of the Board for the Epilepsy Foundation of Northern California.

Joseph Sullivan 

Nicole Ryan, MD is an Assistant Professor of Neurology and Pediatrics and Section Head of Community Neurology at the Children’s Hospital of Philadelphia.  She obtained her MD from Albert Einstein College of Medicine in New York City and completed her Pediatric Neurology Residency and Fellowship in Clinical Epilepsy at the Children’s Hospital of Philadelphia.   Current research activities include the National Infantile Spasms Consortium, the Early Onset Epilepsy study, and the Prevent West Syndrome study.  She is primarily a clinician and is an active advocate for children with epilepsy.

Nicole Ryan

Dr. Elaine Wirrell is the Director of Pediatric Epilepsy and Professor of Neurology at Mayo Clinic in Rochester MN. Her research interests include epidemiology and outcomes of epilepsy in children, co-morbidities of pediatric epilepsy, ketogenic diet and epilepsy surgery outcomes, and she has published numerous articles and chapters on these topics. She is an active member of her local epilepsy foundation and is keen to work collaboratively to find better therapies and improve outcomes for children with epilepsy.  

Elaine Wirrell

Kelly Knupp

Anne. T. Berg, Ph.D. Research Professor, Ann&Robert H. Lurie CHildren's Hospital of Chicago and the Northwestern Feinberg School of Medicine. Dr. Berg received her PhD. in epidemiology from Yale University in 1986.  She is a clinical epidemiologist whose research and writings have centered on the prognosis of pediatric seizures and epilepsies.  She is the PI of the Connecticut Study of Epilepsy, funded by NINDS for over 20 years and a founding member of the Pediatric Epilepsy Research Consortium.  As the Chair of the ILAE Commission on Classification and Terminology from 2006-2009, she led the efforts to develop terminology and classification concepts for the epilepsies that reflected modern technologies and scientific understanding.  She is the recipient of a Jacob K. Javits Neuroscience Investigator Award from the National Institute of Neurological Disorders and Stroke and of the American Epilepsy Society Research Recognition Award for Clinical Research.

Kelly Knupp received her MD from the University of New Mexico - School of Medicine. She completed her residency in Pediatrics at Children’s Hospital of New York followed by Pediatric Neurology Residency at Columbia University at Children’s Hospital of New York. After her residency, she trained as a Clinical Fellow in Pediatric Epilepsy at the Columbia Comprehensive Epilepsy Center at New York Presbyterian Hospital. 

​Dr. Knupp now practices at Children’s Hospital Colorado in Aurora, CO. She is the Director of the Dravet Program. Her interests are epileptic encephalopathies including Dravet Syndrome and infantile spasms.

Anne Berg

Members of the Steering Committee